Comments on: Prone to Wander: Faith, Fear and Brain Surgery

By: When Doctors and Therapists Won't Listen to Your Sensory Concerns

When Doctors and Therapists Won't Listen to Your Sensory Concerns — Mon, 16 Jan 2023 23:52:32 +0000

[…] My boys have a VERY rare, non-sensory related brain condition. When we first found out there was something wrong, our neurologist had zero patience with my questioning his diagnosis, insisting I just accept his explanation. I reached out to a Facebook group for help in understanding what I was being told. One stranger gave me the courage to continue to pester. She told me that a doctor’s job is to explain the complicated things to parents so that the parents can make informed decisions. She told me to not let it rest until it all made sense and sat well with me. I wish I could find that Facebook stranger and thank her. That advice saved my boys’ lives. […]

By: Julie

Julie — Tue, 06 Mar 2018 21:51:22 +0000

In reply to Nancy. Thank you so much for your prayers! Yes, trials do strengthen us if we let God do the painful work!

By: Julie

Julie — Tue, 06 Mar 2018 21:50:38 +0000

In reply to Stephanie. So glad we can be not so crazy together! So glad the site has been helpful to you! Yay! Makes work so much more enjoyable to know it makes a difference!

By: Stephanie

Stephanie — Mon, 05 Mar 2018 05:30:41 +0000

Julie, I can’t thank you enough for helping all of us with the wonderful information you provide but also for sharing the deeply personal and spiritual struggle of dealing with these medical crises among other things. I can definitely relate to the spiritual side of going back and forth – you describe it perfectly . Thank you for sharing so honestly -makes me feel not so crazy 🙂 You’re an inspiration and have helped me so much with my son. I’ll be praying for you and your family! !! Hang in there!!

By: Nancy

Nancy — Thu, 01 Mar 2018 22:19:27 +0000

Julie,
Thank you for your blog and your honesty about how your struggles have lead you to a stronger faith. I have found the same in my life – our faith becomes much more real and strong as a result of our struggles. I am happy that your younger son does not have SWS. I will be praying for your family and especially your son as he goes through the surgery.

By: Julie

Julie — Thu, 01 Mar 2018 19:05:41 +0000

In reply to Tricia. Oh that makes me so happy to hear! Thank you for the prayers!

By: Julie

Julie — Thu, 01 Mar 2018 19:05:13 +0000

In reply to Elizabeth. Oh goodness, last night!?! Sorry to overwhelm you with my crazy life! lol Please let me know if there's any way I can help you on the sensory journey! And thanks for the prayers!

By: Julie

Julie — Thu, 01 Mar 2018 19:03:29 +0000

In reply to Benita Yocum. Thank you Benita! I think of you and your sweet family often! You were such an encouragement to me in those early days of fear. Many blessings to your family!

By: Tricia

Tricia — Thu, 01 Mar 2018 15:35:20 +0000

Your blog has been a blessing for my family; thank you. I will be praying for you and your sweet boys. May God uphold you all, even when you don’t feel you have the strength to stand. Blessings to you!

By: Elizabeth

Elizabeth — Thu, 01 Mar 2018 15:27:45 +0000

Hi Julie! Thank you for sharing. I just found your blog last night and am new to learning aboit SPD (my son was recently diagnosed).
I will be praying for you and your family during this time. A dear friend’s son is having brain surgery this morning so this post really stuck out to me!
I am looking forward to learning from your experiences. Thank you for putting them out there for us to see and relate to.
Elizabeth